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Old Nov 12, 2018, 02:54 PM
guilloche guilloche is offline
Magnate
 
Member Since: Jun 2014
Location: US
Posts: 2,734
Thanks guys, I was surprised to see more responses to this!

To update, my T encouraged me to try talking to another person (just down the road from me, so super convenient) about neurofeedback. She knows the woman who runs the practice, who of course had a ton of nice things to say about this particular neurofeedback-T.

I spoke with him last week, and was disappointed. He uses the same system (with the insecure PW) as the other T, but was OK with me choosing a secure password and giving it to him in person or on the phone to set it up, so that was OK. But, we didn't really hit it off, personality-wise. I felt like he wasn't understanding my questions, and his answers were lengthy and not really addressing my concerns.

As an example, I asked how he deals with any side effects that might come up - and he started talking about how there's only been one lawsuit around neurofeedback (which has nothing to do with what I was asking and was kind of weird).

So, that's a no-go. I'm still trying to figure it out, and driving myself crazy.

Pitiver - I use the free version of Bitdefender. It's OK, but sometimes it doesn't start up automatically and I don't always realize, so that's annoying. I don't know why it happens and haven't had a chance to try to fix it yet. If you have a newer computer (Windows 10) - I've heard that they're starting to build in the anti-virus stuff, so you might check in to that. It's supposed to be pretty decent, I believe, but I'm not sure of the details.

Downandlonely - Thanks! I wondered about it being a violation as well, it seems so blatantly bad to me. I think they might get away with it because their intake paperwork says that they're providing an "experimental treatment" and they "don't diagnose - etc. In other words, even though this person is a licensed therapist, it sounds like she's saying she's not acting in her role as a therapist in providing this type of treatment?

I don't know. My current T also thought it sounded like a HIPAA violation. I don't think I want to go down the road of trying to report it, honestly, since I'm overwhelmed already with life stuff right now. I think most of her clients are doing "peak brain training" stuff (i.e. people who don't identify as having psych issues, just trying to make their already good brains better), rather than seeking psych. help.

SalingerEsme - Oh wow - I would seriously LOVE to hear any advice you can pass on re: how to find someone. I'm going crazy here. It seems like "neurofeedback" covers a ton of different things (infralow, Z scores, something that doesn't use Z scores, neur-Optimal, entrainement, etc...) - and it's hard to figure out who is doing what, and what's most effective.

I feel like, with the psych stuff (CPTSD for the win!) I need someone who knows what they're doing, not someone who's just following a flow chart of "do this, then this, then this" - which I'm worried some people might be doing.

How are you liking it so far? Is it helping at all?

Nottrustin - Yeah, I know... I try to at least be mindful in my emails that they *could* be compromised (email is sent as clear text, no encrypted, and travels over several computers - and could be saved by any of them). But at the end of the day, I try not to worry too much about it. But in this case, it just felt... so blatantly dumb to have it set up this way. And so easy to fix. It's so bad... it makes me question what other dumb things they might be doing that I can't see... ! (Sorry, I hate saying that - but it's true!)