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Old Jan 01, 2019, 04:26 PM
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Blueberrybook Blueberrybook is offline
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Member Since: Oct 2017
Location: TX
Posts: 6,598
Quote:
Originally Posted by BeyondtheRainbow View Post
(please note there is an answer in dark green in the quote box as well as an answer in the white part of the reply. i didn't do that well.


Clozapine is pretty side effect heavy. Initially I gained weight although I've managed to lose that and about 20 more pounds with metformin, diet and exercise. It tends to have somewhat evil effects like severe drooling at night, bed wetting and lots of labs (weekly for 6 months, every other week for 6 months then monthly while on the med) to monitor for abnormal immune effects. It makes me very tired and I sleep a lot; on a lower dose I didn't feel nearly as good although I maybe slept less. I honestly don't care about any of those because it is the first drug that worked for me but it isn't fair to say it's a great drug without being honest about the downsides. It is supposed to be used as a last resort after all other reasonable meds have been tried and that is exactly how it was used for me. I knew for a long time that I might eventually need it and then for about 6 months that if nothing changed that I would need it and then I reached a point where I obviously needed it. I'm glad to have it; I've been on 40 plus meds and 70 plus combinations and had practiically given up on anything ever working as well as this does. It's not perfect but for me it's the best we can get and I'm grateful to have it.
Ugh, those side effects do not sound great. I don't need added exhaustion between the BP, the meds side effects, and the fibro fatigue & brain fog. I can't even separate what is causing what. I am very lucky to not have issues other than fatigue on Seroquel, though I suspect it may be keeping me weight stable with the amount of exercise I do, eating pretty much normally. My weight is already bad enough, the pdoc nags, lectures, etc. but just enough to keep me out of the hospital and as it has more or less been stable several months now, the pdoc is less concerned. However, stupid ED thoughts make me want to lose weight and stop Seroquel cold turkey and see what happens (and yeah, I bet that would be mania).

I hope my daily life won't be so stressful this year. That ulcer thing alone made 2018 continue its rocky start, and now I have PTSD from the whole experience, not to mention paranoia and/or hypochondria every time I get pain on my sides or stomach. Ugh.
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD

Seroquel, Cymbalta, propanolol, buspirone, Trazodone, gabapentin, lamotrigine, hydroxyzine,

There's a crack in everything. That is how the light gets in.
--Leonard Cohen