Day from absolute hell. Girl got off the bus covered in vomit, had to change her and wash her clothes. Sat behind her on the mat holding her forward in case she vomited again. Killed my back. Had to sit her in a wheelchair that wasn’t her own, called a rifton chair, more like a regular chair with small wheels. Not very maneuverable. Nurses gave me **** about her chair when I brought her down for her feed. Get a call at 12:30 saying her mom was there to pick her up. Her diaper hasn’t been changed, she’s still in the school clothes because we haven’t changed her back into her own clothes (which we washed) yet, still in the rifton chair, etc etc. we rush to change her, then the teacher comes back and says no, she’s not actually going home, the ****ing BUS DRIVER called the mom and told her to come pick her up. None of the bus driver’s damn business. She’s throwing up because of her tube feed, not because she’s sick. Well I might as well get her changed now right? So I change her, set her up in her regular wheelchair, get her all set to go home. Fire drill. Wtf right? We come back in, I get her coat on her. Bell rings, go outside, wait for the bus. Of course, she coughs, then starts vomiting all over her coat. Thank god the teacher and the other aide were standing near me. I rush to get gloves on and turn her head. The aide rushes in to get wipes and a medical pad called a chuck. We clean her up as the bus is pulling up. Then we get yelled at by the bus driver and the nurse (who is there for another student, not even mine) for letting her vomit. Like wtf? Like I control it? She’s new to the tube feeding, they haven’t worked all the kinks out, it’s not my fault and frankly not my problem.

Now I’m at the dr about to get a painful test to see if they can do the RF ablation or not. So fun. I just need to go home and take a nice hot shower. Seriously. A nice hot shower and a nice dinner with my son and boyfriend.

Oh and I bought a pack of cigarettes and smoked like half of it already. Will have to apologize to BF for that.