I think we just have to stay vigilant in the moment, but take it as it comes. My diagnosis keeps changing and the doctors really aren't sure what to make of me. I'm 38 and all of this is new to me. I'm trying to roll with it and not read too much into my expereinces compared to 'normal'.

I'm not sure I agree with your doctor saying what he did. It sets expectations and your experience could be wildly different. I do hope he is right though!