I posted this in the Premiere Poohbah forum but I wanted to share more widely and hear others' similar stories, if they want to share.

I feel like I'm fighting the world right now. I've had to have numerous fights with Kaiser about getting the right care. But finally today a small victory. After an urgent care visit, a GP visit, and a night in the ER, I had a phone appointment with a doctor today, and after having to argue with her, I finally got her to refer me to a neurologist. And they actually called me today and scheduled the appointment. July 18. Hopefully some answers around that time. I'm going to keep a detailed journal of symptoms between now and then. It could be debilitating migraines but that would leave out a long list of symptoms. Someone here mentioned CFS, and that seems likely. Also, I was researching neurological conditions in general, and strangely, M.S. seems to fit. I am not self-diagnosing, just making notes of things to ask the neuro doc about to either rule out or confirm. The other possibility which is likely is narcolepsy. Those three would actually cover all of my symptoms, even the weird outliers.

So that was a small win.

Just as I was celebrating that small win, my housekeeping service is trying to renege on their contract. The housekeeper is included in my rent as an amenity, but they have been unreliable, and I have given them feedback complaints about this unreliability and lack of communication that has resulted in more then minor inconveniences to me. Rather than reach out at all to address these problems and resolve them, they are saying they cannot meet my expectations (like seriously my expectation is that they be there before 5pm and that I don't have to supervise them, not a whole lot). I responded if they fail to provide service I will seek to have my lease voided with my apartment complex since I selected this place specifically for that amenity. And that is 100% true. I told the apartment manager when I looked at this place that I needed convenience due to my disability and work requirements. I told him specifically I was looking for a complex that could provide me support. I set up my weekly service with the housekeeper before I set up my water/power account. That should tell you something. So now I am dealing with that. Hopefully they will resolve these issues rather than just try to "fire" me as a client, since the resolution is pretty simple. Unfortunately they have complaints all over every review site exactly about this issue.

My housekeeper herself though is lovely and we communicate through Instagram since she can't give me her phone number. That was our loophole. She's always so sweet, the dogs love her, and if I'm not feeling well and need to sleep, she just does the chores in the kitchen and locks the door when she leaves. My complaints have always been about their lack of communicating from the office, not about the housekeeper herself, and she knows that. And, I also have pretty much never complained about the service provided itself. Aside from a couple of grocery receipts that had some other client's stuff on it, I've never complained about the quality of the chores done, except for yesterday when they sent a replacement housekeeper bc she was sick. And he had no clue what to do. I had to instruct him on how to put groceries away. I was polite to him and told him I wasn't feeling well and he could leave the rest of the chores. I did then follow up with customer service and explain that I had told him to leave because I am not able to supervise. So that is now a battle I have to fight. If they discontinue service then I have to pay another provider to do these things, which means I have to pay out of pocket. So I'm trying to puff up a bit and make my landlord lower my rent if the service cannot be provided as promised, especially when I had made it clear that was the deciding factor on signing this lease. We'll see. Kinda feels better just to talk about it here. I don't want it to ruin my whole weekend any more than my weekend is already ruined considering I've had an "episode" this whole week, starting Saturday night...hence the ER visit last night.

And then a dress I ordered online came in the mail, and of course it doesn't look anything like the picture, So I complained and asked to return it. Then they kept reaching out to "resolve" it and I'm just like, you know what, you had one chance and that's it. Let me return it for a refund and apologize for the mistake and let's be done. Then today while I'm trying to deal with doctor's stuff on the phone, and not feeling well, of course, someone from the company called and wanted to talk, and I was like, um, I'm sorry but I'm dealing with a thing right now, I can't talk to you. And I hung up. But then when I got through my doctor's stuff I emailed them and let them know they could call me back but that I had been in the middle of an urgent matter and waiting on a doctor's call and thought they were the doctor when they called (obviously that would irritate anyone waiting to try and get medical care, lol).

I did talk to the leadership seminar I'm taking again this summer, in two weeks, in fact, and discussed accommodations with them, and they were totally willing to do a few things to help me get through these 2 weeks of 11+ hour days. And since I did the course last year they were also comfortable that I wouldn't miss a whole lot if I need a break. My hope is that knowing I can use the accommodation will give me relief to not need it.

So, I'm fighting with the world right now. At least that's what it feels like? Anyone else ever feel that way?

Thanks.