Hi unaluna ~ Interesting that Topomax is helping control your symptoms, and that is a very good thing. Can you explain "the shiver"? Is it like you are feeling cold and suddenly you shiver for a few moments?
Birdie
Quote:
Originally Posted by unaluna
Hi Birdie-
Yes, i googled and googled until i found a match. It happened all thru childhood and adulthood. I used to call it "my shiver". I didnt really make the connection myself until my topamax was decreased and the shiver returned a couple of times. My mother saw it and said, whats that?! Its funny, it was always exactly the same, and so were peoples reactions.
I havent experienced the shiver now in almost 20 years since ive been on topamax, except for that breakthru time. I have talked to drs about it, but theyre like, if it aint broke, dont break it for the sake of finding out what it is! No sense in risking a seizure.
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