I am relieved by my DX
the only reason I say this is that I didn't really have much of an oppotunity to plan future, plan life, know what I want to do so I'm not really losing anything in the first place
okay: so I can never work and be a theme park engineer (which is one thing I did think about doing), but it could be a lot worse. their are a lot more complex severe illnesses to have
re: the original poster, I often get wound up that my medical file is in complete, or as complete as it should be (meaning I don't get the treatment I need a lot of the time)
it's frustrating
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