Quote:
Originally Posted by ~Christina
WC your blood work should be showing a decrease in your sed rate.
I didn’t have to do any of the text stuff for some miracle my insurance covered it and now Humira.
I haven’t filled out my mood chart in forever. Maybe I should again. Thanks for reminding me of that useful tool.
BitdDancer, yes it’s possible your dose might be tanking you down... I’m glad you have a Pdoc appt coming very soon.
Yes today I do feel my prednisone is really kicking my stubborn lungs back into shape, I have 3 days left, I am going to do the full 10 days since I’m doing fairly well with the side effects. I don’t want to fall back into a flare.
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For those who do not know, Amgen offers financial assistance with certain meds. Enbrel is one of them. They do a lot of patient education, offer assistance through nurses, etc. A part of their program involves answering questions/rating symptoms from 8 am to 8pm. It's really not a problem. It keeps me mindful of my status in a helpful way.
This model reminds me of the usefulness of mood charts. I recall using mood charts long ago and found them useful then. I do not often hear of people using mood charts anymore, even when people are newly diagnosed. Maybe they just do not mention this? Anyway, I wanted to say how helpful I have found this approach, used for a variety of conditions.
Love and Gratitude!