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Old Oct 08, 2019, 03:22 PM
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Wild Coyote Wild Coyote is offline
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Member Since: Jun 2016
Location: USA
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Quote:
Originally Posted by ~Christina View Post
WC your blood work should be showing a decrease in your sed rate.

I didn’t have to do any of the text stuff for some miracle my insurance covered it and now Humira.

I haven’t filled out my mood chart in forever. Maybe I should again. Thanks for reminding me of that useful tool.

BitdDancer, yes it’s possible your dose might be tanking you down... I’m glad you have a Pdoc appt coming very soon.

Yes today I do feel my prednisone is really kicking my stubborn lungs back into shape, I have 3 days left, I am going to do the full 10 days since I’m doing fairly well with the side effects. I don’t want to fall back into a flare.
For those who do not know, Amgen offers financial assistance with certain meds. Enbrel is one of them. They do a lot of patient education, offer assistance through nurses, etc. A part of their program involves answering questions/rating symptoms from 8 am to 8pm. It's really not a problem. It keeps me mindful of my status in a helpful way.

This model reminds me of the usefulness of mood charts. I recall using mood charts long ago and found them useful then. I do not often hear of people using mood charts anymore, even when people are newly diagnosed. Maybe they just do not mention this? Anyway, I wanted to say how helpful I have found this approach, used for a variety of conditions.

Love and Gratitude!
__________________
May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
Thanks for this!
~Christina