Quote:
Originally Posted by BirdDancer
I hope your son doesn't have epilepsy. If he does, there are some types that kids kind of grow out of eventually. There are many forms and causes. My mother had epilepsy, but she never grew out of it. My husband's best friend's daughter seems to have. I think I have only ever mentioned this to Wild Coyote, but even I have an epilepsy diagnosis, but one where you don't lose consciousness. It's actually not a definitive diagnosis (neurologist said yes, epileptologist "not definitive"), but it was a rough enough period for me that I'd be extremely reluctant to give up my Tegretol XR (also a bipolar moodstabilizer). Tegretol XR was my hero during that period. It may be why I can continue life as if I don't have epilepsy.
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Thanks BirdDancer. We hope he doesn't have it either, but the doctor did say if he does it would be likely he would grow out of it in his teenage years. I am a little worried about the idea of him taking anticonvusants. I had a very strong reaction to one and so did my mother. Neither of us can tolerate Depakote.
Thank you for sharing your personal story with me. It gives me hope we can find a med to help him if it comes to that. I wish there was a definitive test, but the doctor did warn me that the tests may not be definitive.
For now, I am just trying to stay calm and I am grateful we're getting the help we need. We're going to remain brave and we'll cross whatever bridges we have to cross together as a family. We are fortunate to have a lot of excellent people offering their support. I greatly appreciate yours!
