Quote:
Originally Posted by Wild Coyote
I woke up to extreme stiffness and in excruciating pain, all over.
It all became worse after getting up and in trying to get around. 
I am having a severe flare up of Psoriatic Arthritis. (it is similar to Rheumatoid Arthritis in some symptomatoloy; yet, is different.) We employ some of the same "immune-modulating" drugs used in RA. I have been injecting one of these drugs for several weeks now. I had thought it was working, until yesterday and today.
I am having difficulty sitting, standing, walking, using my hands/arms, etc. I have had to resort to very strong pain meds, which I do not like to take. However, I am in too much pain otherwise. (If it was not for the prn pain meds, I'd definitely be at the ER). The meds don't make me goofy, that's genetic!  In all honesty, I am very used to these meds, so I usually only feel some pain relief. I don't feel goofy, at all. (Just a little Public Service Ad on the need for treating pain adequately.) 
I have hope, that one day, we will find a helpful medication. This is a destructive type of an inflammatory, immune-mediated arthritis. If one only treats the pain, joint destruction progresses. We have to use anti-inflammatory medication, pain meds and these immune-modulating meds, aka Enbrel, Humira, etc. (These immune-modulating meds cost between $4500 and $6500.00 per month. Some people have coverage for this; some work something out with the drug manufacturer through a patient assistance program, others have a very hefty co-pay.)
I know our ~Christina often mentions the fact that she lives with PsA. I do, as well. We each mention this every now and then. We aren't looking for sympathy. We ARE trying to raise awareness in general. Just a few years ago, Psoriatic Arthritis was barely recognized. Things are changing and I know both ~Christina and I are immensely grateful!
I am extremely grateful that things are improving for people living with PsA.
Thanks for reading!
Love to All!  |
Well my friend !! I absolutely hate that you are in such great unrelenting pain. I am grateful you have some medication that can hopefully knock it back to the background roar that I know you also deal with day in and day out. Freaking sucks and it’s damn sure NOT fair.
Yes Psoriatic Arthritis (PsA ) is incredibly painful at times..it’s hard to explain to anyone how it feels. Bone deep pain every joint down to the pinky toe feels swollen and can be visually swollen and hot.... then there’s all the cracking of bones in my ankle and feet when I walk..It’s also a auto immune disease... it can keep your overall body full of inflammation which just causing more pain, anxiety because we are always on high alert ... Some days I can only manage to hobble around...I never thought I would in such terrible shape
I am grateful that was getting help from Enbrel but it just quit, now on Humira hoping it helps. Yes biologics can decrease pain but it’s more so about stopping or slowing down the degeneration.
Yes as mentioned by WC we don’t mention for sympathy it is for a heads up .... lots of people struggle with over all body pain and our sharing might help someone reach out and look for a cause. Lots of Doctors just blow off complaints of pain since we have a mental illness . I get so annoyed with that way of thinking.
WC ..... I think we need to find out who has a VooDoo doll of you and is stab happy. I’ll rip them limb from limb
I hate that you are dealing with this
Love you always