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Originally Posted by ~Christina
Well finally saw the Pulmonary Doctor. He thinks that my Humira injection I’m taking for psoriasis and PsA is to blame based on how long I have been on it , not long but long enough for this to appear. Less than 5% reported this problem. Arent I just lucky ?
He ordered a Stat Cat Scan which I went and had done, he did give me samples of Spiriva to take along with my Symbicort.
I see my rheumatologist the 14th so obviously we will have to decide which biologic to try next.
On to yet another major problem. I called my Drug plan through Humana to make sure it’s going to roll over into 2020. Yes but my premium will go from 4.75 a month to 30.00 and no one can tell me how each one of my meds will cost ... ummmmm ?!???
She said well go to social security and see if you still qualify for help due to low income SSDI. I said okay ... will they the notify you ? “ I don’t know” wtf??? Do you know anything? “ You should probably call us back after going to social security. “
I don’t know if they will look at just my SSDI or both my husbands and mine combined. Steve’s premium is already 43.00 and his meds are not cheap.
With what I have right now After I pay the first 50-75.00 at the first of the year all my meds then are zero cost. So I have no idea if I’ll be able to afford any let alone most biologics cost thousands of dollars a month out of pocket, sure I might qualify for help from the drug maker.. but if not I’ll just be covered in psoriasis and my joints will continue to be damaged until I can no longer walk ?? Let alone my inhalers and Fibromyalgia meds.
I know I’m a broken record but we are just scrapping by monthly. The only way this Florida trip for Christmas is going to happen is we sold gold jewelry most was broken chains but there were a few rings that had some sentimental value but hey we had to come up with a way to make this trip happen.
My anxiety is through the roof I took 2 Xanax and I should have just swallowed a tic-tac for all its doing right now.
We can just never catch a F’ing break.
FML
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((((((~Christina ))))))
There is much to touch upon here.
I will keep it short for now.
I love you and I will do anything I can possibly do to help you to figure out what you will need and how to fund it. You are very, very good at this and probably need no help; however, sometimes when we are under a lot of stress, we can use some help.
As for the biologic meds, most, if not all, of the companies have a program or two for assisting patients. Mine (which you have already used an have moved on from) pays my co-pays, instead of giving 100% coverage. Those seem to be the two options -- either 100% coverage or co-pay coverage. Either way, it should not cost you much, if anything. I know even a minimal fee is a lot.
Let's hope you have choices in your biologic and also hope you will find there is plenty of coverage sponsored by the manufacturer. fingers crossed!
You know I will help in any way I can do so.
Breathe. don't jump to any conclusion yet. There is not enough info to know what is going to go on. You don't need this kind of challenge; however, I do think you can get through it. We just need to look at all options and, possibly, be creative, hoping for the best.
Breathe. Breathe. Breathe.
Please do let me know how I can be helpful.
I am here for you!
