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Originally Posted by ~Christina
Well finally saw the Pulmonary Doctor. He thinks that my Humira injection I’m taking for psoriasis and PsA is to blame based on how long I have been on it , not long but long enough for this to appear. Less than 5% reported this problem. Arent I just lucky ?
He ordered a Stat Cat Scan which I went and had done, he did give me samples of Spiriva to take along with my Symbicort.
I see my rheumatologist the 14th so obviously we will have to decide which biologic to try next.
On to yet another major problem. I called my Drug plan through Humana to make sure it’s going to roll over into 2020. Yes but my premium will go from 4.75 a month to 30.00 and no one can tell me how each one of my meds will cost ... ummmmm ?!???
She said well go to social security and see if you still qualify for help due to low income SSDI. I said okay ... will they the notify you ? “ I don’t know” wtf??? Do you know anything? “ You should probably call us back after going to social security. “
I don’t know if they will look at just my SSDI or both my husbands and mine combined. Steve’s premium is already 43.00 and his meds are not cheap.
With what I have right now After I pay the first 50-75.00 at the first of the year all my meds then are zero cost. So I have no idea if I’ll be able to afford any let alone most biologics cost thousands of dollars a month out of pocket, sure I might qualify for help from the drug maker.. but if not I’ll just be covered in psoriasis and my joints will continue to be damaged until I can no longer walk ?? Let alone my inhalers and Fibromyalgia meds.
I know I’m a broken record but we are just scrapping by monthly. The only way this Florida trip for Christmas is going to happen is we sold gold jewelry most was broken chains but there were a few rings that had some sentimental value but hey we had to come up with a way to make this trip happen.
My anxiety is through the roof I took 2 Xanax and I should have just swallowed a tic-tac for all its doing right now.
We can just never catch a F’ing break.
FML
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I'm glad this doctor at least has some thoughts as to why your lungs have been so out of control. A possible answer is better than them just sending you on your way with more steroids.
So sorry about the insurance. That must be incredibly frustrsting and scary not knowing how you'll be able to access the medication you truly need.
I wish the process of travelling was less painful than it has been. It takes a lot out of you just to be able to go and it sucks travelling when you already feel depleted.
I'll be hoping that unexpected abundance begins to come your way. A random coupon here. A gift from a friend there. An offering from a stranger. An unexpected contest win. Something fun and random. I know money doesn't come out of thin air, but sometimes abundance can when you least expect it. Now seems like a good time to hope for miracles.
Huge hugs to you my friend. You're handling a continued difficult situation with grace as best you can.
