View Single Post
 
Old Nov 10, 2019, 08:05 PM
Unrigged64072835 Unrigged64072835 is offline
Legendary
 
Member Since: Oct 2010
Location: Under the noise floor
Posts: 18,579
Quote:
Originally Posted by ~Christina View Post
Well I was up until after 7am, was busy reading. About 10 am I woke up to that “ Omg I think I am going to die kind of acid reflux! “

Ugh ugh ugh ! I have tried to lay down but yet I can’t despite the acid pills and liquid medications.. I think today will just have my stomach feeling terrible, ugh

I’m a little hurt/annoyed/sad/ annoyed with my husband.

It revolves around multiple medical problems and testing I’m having done.

I see my rheumatologist on the 14 th for our regular 6 week followup , which we have to decide what to do now that my pulmonary Doctor feels the Humira is what is causing me the problems. I have an appt on the 19th for a full Pulmonary functions test, both of those are appts 1.5 hours away. The 15th I have my liver ultrasound in my town, “well if your blood work shows fatty liver why do you need the US?? To compare to US done in Florida ,,

If your Pulmonary Doctor feels it’s Humira why do the pft? Unmmm because I need a baseline and I’ll likely need extra meds to help my ability to breath while the Humira leaves my system ?

This just infuriated me, god knows we are so strapped money wise but my liver and breathing are not something I can just ignore.

He’s told me before when he gets freaked out over my medical care and he has to find out how to pay for it I’m to just ignore him , well it’s really hard to ignore it !! 9/10 times I’m in the bathroom crying as quietly as I can.

Humira half life is 3-6 months !! I’m hoping my rheumatologist can assure me the SOB symptoms goes away quickly. * fingers crossed*

I’m done trying to explain to my husband that psoriatic arthritis (PsA ) is not just a normal aging process. It’s an auto immune disorder that is just going to keep destroying my joints and needs treatment to yes hopefully help with the pain but it’s more so about stopping further damage. The X-rays of my feet already show moderate to severe damage, id really like to continue to be able to walk for as long as I can. I’m only 52 for crying out loud..

I do not enjoy having to see doctors or having testing, but none of this can just be ignored. This amount of chronic shortness of breath can lead to irreversible damage to my lungs more than my asthma already does.

It’s just so damn upsetting !

I’m just going to go binge some ER and hopefully get my mind off this shyt!

Hope everyone has a good Sunday

Hugs and cookies~
Can understand about the acid reflux. I don’t even bother laying down, just sit straight up and try to sleep that way. Yeah right. One of the hardest parts is that my nighttime meds can cause it too.

Sorry your husband is giving you grief for the testing.

I do hope you have some resolution soon, and breathe easier.
Hugs from:
Anonymous46341, bizi, Nammu, Sunflower123
Thanks for this!
bizi, ~Christina