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Hi Mm, my first and loudest thought is to tell you to write it down. Basically, your OP that you've posted here. So write it down and take it with you to read aloud. If your treatment team doesn't know what's going on with you...well, that's not good.
As for labels, I think they're important. Labels give me a sense of security - for one thing I can read about my dx and have a clear understanding of what's going on. Also, I can form bonds with peers, like I do here.
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