Still sparring with the SSA re: my SSDI claim, which is over 30 yrs old and has been paid for that time. Upon a review, the whole claim became "undone."

They've argued : The don't know who I am. I've never had a claim. They have records showing I have been working. And more.
How do you know I 've been working if you don't know who I am?
I can show you that you've been paying me, via Direct Deposit. ETC.

A caseworker assigned to me REFUSES to inform me of my rights, including my right to appeal, how to appeal, etc.
I'd reported the caseworker, forwarding her letters to me then to the area manager, who oversees operations under her local jurisdiction. All of this was done by certjfied mail, etc.

Now I am paying a price! Surprise! The SSA has collected all kinds of medical records this year. It is my right to request my SSDI record, meaning all info gathered and used to make an SSDI determination. I've also requested they advise me of my rights. I'd sent this request in to the SSA's regional manager by certified mail. The response (from the area manager , after I had made a formal complaint against a caseworker under her jurisdiction) was to send me my own letters! Her note to me: You've requested your records. here they are. These are your documents. If you want someone else to see them, show them. (huh?) I have asked, 3 times in writing, for them to advise me of my rights, too. Are they going to do so or not? The whole process for reporting rights violations within the SSA is like: The fox guarding the hen house.

I've made my requests in writing, via certified mail.
Still, they refuse to give me any info I need and to which I am entitled.

I have their ridiculous letters , repeatedly written to me. The letters CLEARLY show they are violating my rights. I also believe this group of SSA agents are discriminating against me, treating me this way due to my having psych diagnoses (along with medical diagnoses). Their letters blatantly disregard my requests and my rights. They have tried, in writing, to intimidate me into my not insisting upon my rights within this process. I know this all seems unbelievable! It is absolutely true; in fact, my knowledge/viewpoint is understated here.

The Disability Determination Services Unit here had contacted my pdoc, telling her they had to have her session notes immediately. She wanted to help me, so she forwarded the notes. THIS DEMAND IS AGAINST SSA/SSDI REGUALTIONS. SSA/SSDI information releases states all
records are to be released, EXCEPT session/visit notes with a pdoc. yet, another infraction.

The entire process, the two agencies involved, have been violating my rights since day one of this mess.

I have located the SSA/SSDI Manual online. The steps, as outlined within their own regulations, have been totally ignored by this local SSA office. All documents are enroute in a formal complaint to the Civil Rights Division of the SSA. This is the process which must be taken within the SSA ...AND anyone is free to also report to any/all other interested Civil Rights agencies.

I am leaving out some (additionally) very alarming infractions which have been made by these two agencies. I have documented these infractions and am submitting the very clear evidence to investigative agencies.

I've established an ongoing "paper trail" of letters received and written, along with documentation of their receipt of my written statements and requests, etc, I also have a detailed file of notes made contemporaneously when having any contact with SSA. agents/employees.

I am determined to win my case.
I am also determined to do my best to see that others do not have to go through this nonsense. I am not sure of exactly what I can do; yet, I will be giving it my best. I am asking for an investigation within the SSA Civil Rights Division (which is a part of their internal process and feels to me like the fox guarding the hen house). I am writing formal complaints to be submitted to external agencies and am giving my documentation to other investigative agencies.

Oh! And then there is MY attorney. I now have to hire an attorney, not because my claim is bogus, but because this agency is clearly and repeatedly violating my rights. They are now clearly "acting up" because I have already reported a specific caseworker. It's additionally reasonably clear, and I am alleging, they are blatantly discriminating against me because they think they can get away with it, due to my psych diagnoses (as disclosed to the SSA for SSDI review.)

While I do realize this type of an account might be scary and a bit unsettling to some/all of us, I am sharing in order to help us all to identify options if we ever find ourselves in a similar situation. I have started a resource thread for reporting discrimination and/or rights violations occurring with any interactions with the SSA. The resource thread is located in the "Insurance Forum." I will add to that thread as I move through this process, noting which agencies are most helpful, etc.

Most Sincerely and With Love to All