My intent was not to upset Hope but to just clarify different things I have read on different posts. The only way to offer useful suggests and support is if we understand the situation. Disability and anything to do with medical can be very confusing and frustrating. I don’t want to make Hope’s life anymore difficult by giving bad information. But I would like to try and make things easier for her even if it is just how can she get 1 more hour of sleep a week. Got to start small some times.