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Tucson · Mar 10, 2020 at 01:57 AM

Quote:

Originally Posted by BethRags

For 4 to 8 weeks I've been taking Latuda, between 60 and 100mg. To counteract the pretty much full-body tremor I've had to take Cogentin and Propanalol. Neither does jack. In fact, I don't think the Latuda is doing anything helpful, either...definitely not worth the major tremoring.

I've not tried Cogentin, but I agree with you that Propanalol does nothing. What do you mean by full body tremoring? I had something that could be described like that. All of me was shaking really bad and I couldn't stop it. It was worse when I laid down, but it got late and I HAD to try and rest which I finally did, but it wasn't easy! It wasn't from Latuda, though; I forget which drug did that, actually. (i've gone through so many!)

Yes, you have described it...shaking head to toe. It's very uncomfortable, as you know.

After thinking it all over I've decided to stop the Latuda. I didn't take it last night or this morning. I don't feel one bit different than I felt on it. Feels like I've been swallowing placebos.

Still some tremor in my hands and jaw. I do not feel like I have to jiggle my leg, though.

I felt that way. My hands would tremor for weeks after that initial episode! Of course, pdoc tried propanolol which didn't help. The only thing that really helped was time.

Propanolol seems like a waste. Doesn't do anything at all.

Lost 13lbs. during February.
CONGRATS! I wish I could say the same. Little by little...

It's all about going off Seroquel. My appetite dropped off almost immediately.

I find that Primadone works really well for tremor. My doctor learned about this from me. He is even using it on other patients. Latuda is not a placebo. So I would treat it with respect and titrate down. Better yet, I would normally think you should do this under your doctor's supervision. However, if you are having extreme body shaking, I understand why you immediately stopped taking it.