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I am getting incredibly frustrated with the MGUS disorder and the people on the support boards.
- I keep asking for help in interpreting my results and they are useless.
- They all start with the sentence, MGUS will never go away. But it seems clear to me that they have never questioned it. In fact when I did turns out there was a lot of people who it has gone away for.
- No one wants to understand the disease or do anything to find out how to avoid progression. All they want to do is live in denial land.
- It seems clear to me that many of them are hypochondriacs or have health issues that they all want to blame on MGUS. Almost everything in their lives they blame on MUGUS although all doctors state there are no symptoms.
I have one more blood test that is due Monday. If that is normal, and based on other blood tests, I have reason to think it will be. I will have all the blood tests being normal and ONE test having a "faint" spike. So can we really say I have a disease at all?
I did have a visit with a physicians assistant yesterday and she told me the X-rays did not measure for scoliosis. So the radiologist was eye balling it. Phew. She gave me a referral for three physical therapy sessions.
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