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Very disappointed with today's visit. I saw "the" preeminent doctor in the field. He is the doctor for Tom Brokaw.
But he had one drawback that against my better judgment I went with. He was a man. I don't mean to be sexist but, in general I find men, especially powerful men, do not have the manners of women and seem think I am there to listen to his words. When really I know everything he is going to tell me before he opens his mouth and I just want the opportunity to ask questions that aren't answered out there.
We had a 40 minute zoom conference where he just talked and talked and talked. I figured I better not piss off the leader in the field so I waited my turn to speak.
It didn't happen.
- as with all doctors they go to imho insane lengths to convince me the condition is nothing without telling me factually why they are unconcerned.
- If I am there, then I am concerned about it and I think it rude for them not to have the same level of seriousness -- without explanation. I work in something that is considered the top of the ladder and I always keep in mind that people walking in the door -- it is life and death for them even though it is just another day for me.
- He was so interested in talking about himself that is all he did. To the extent that he spent at least 15 minutes of the meeting talking about the corona virus -- I did have a question about that but he didn't let me get it out.
- I only went there because I wanted to be under the care of the best, but it seems I have been dismissed. He talked about how he would give my hematologist directions. I suspect strongly that will just piss her off. (that I went behind her back to the big boy).
- He brought up that I should do no further tests at the moment. He thinks that I should be tested every three months and only do the big boy tests if things progress.
- He did give me his e-mail and phone number if I did want to bring things to his attention.
- He says that, should I develop blood cancer, we have treatments now where my lifespan will not be shortened. I think he is crazy. I know he wants to put a positive face on it but saying such thing gives me great pause. Perhaps he is a god but, that makes me think he is overly optimistic.
- He seems about 75 or so -- so I am wondering if he will even be alive when I might come down with something.
I am considering seeing if I can't start a website on this. If doctors won't take things seriously.... maybe we have to do it on our own.
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