Have you considered partial disability or disability? It isnt an easy process but I heard that with everything that is going on the usual rejections/appeals may not be as much of an issue now with the current state of things in the US> You can work and still receive disability. Do you have doctors and other care workers who would be willing to help you fill out the paperwork? If you do go this route and need suggestions 0r advice about it feel free to PM me.