I want to ask that the Moderators please not move this thread as this forum is my home on PC and I need support of friends.. Thank you.

My husband has been ill almost 3 weeks now we tried an antibiotic and it wasnt helping, So chest xray, labs and sputum culture, started a new antibiotic while we waited on culture to grow out.. Well 3 days later another antibiotic based off what the culture grew out...

He has Stenotrophomonas ( Pseudomonas) Maltophillia an aerobic Gram-negative bacillus.

No idea how he caught this.. Its mainly something you catch in the hospital by way of irrigation solutions, IV fluids, medical implants or Aquatic enviroments ... Which he has had none of these since last August while in the hospital. This is not something that just lingers in the body and pops up months later.

I ran by the Oxygen company we use and picked up doubles of Oxygen tubing and nebulzing cups and tubes. They will be cleaned daily and changed out..

He is now on Oxygen fulltime not just at night as his oxygen level is far to low. He is beyond exhausted. Hes awake for me to feed him, Make sure he takes his meds, Nebulizes and I wake him every 2 hours to keep him pushing fluids at a minimum of at least a gallon a day.

Vital signs every 4 hours around the clock.

We see our Doctor again on Monday unless he spikes a temp or his breathing gets worse while using oxygen 24/7 ...

This is a nightmare.