We took her to emergency the other day. I was hoping they could run an EEG right away since seizures are in the blood line. It was the weekend and EEG was closed. The appointment is set for next Monday with a follow up app with her new ped doctor.

What we're seeing is her contracting her arm/leg/torso muscles, prior to her falling asleep. We initially thought this was her self-soothing way of falling asleep. She's been doing this several times per day since she was about 5mo old? It's kind of cute.. and never did it occur to me that it could be medically related.

When I research symptoms, all that comes up is Infantile Spasms, Myoclonus Seizures, Absent Seizures, and Dystonia. I've suspected my partner has facial dystonia (although it could be due to years of drug use prior to our relationship) and I've mentioned already about the seizure blood line.

Then last night, I came across a forum, NetMums, who talk a lot about these exact behaviours their children exhibit, and only when in a highchair, carseat, and stroller. Many of them had a series of tests done that came back clean. A couple of them said their doctor called it "self-gratification".. a soothing behaviour their child enjoys and will grow out of. I'm starting to think this is it, afterall. I am so relieved but will still go ahead with the upcoming EEG. We've been documenting and taking videos.

Our daughter only does this in a carseat, stroller, and highchair, too. The concern was triggered when her face started going red and the behaviours escalated to mealtimes (oppose to just prior to sleep). She also just started raising her arms above her head (twice) which is a symptom of Infantile Spasms. Other than this though, she's developing really well. I'd say her gross motor and language development is even advanced, which contradicts IS.

I'm not a Hyperchondriac. I'm usually pretty good at ruling things out and don't get overwhelmed with Google searches.

I'm really hopeful that it's just a self-soothing behaviour which is apparently quite common. I have 3 children and 12 nieces/nephews. I've NEVER seen this behaviour before and it was really hard to find information about it.

I'll update this post once I know more from the doctor.

Thank you for your support!