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Cocosurviving
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,892
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PC PoohBah!
Default Jun 26, 2020 at 01:02 AM
 
Having chronic illnesses is definitely hard. It takes a long time for many of us to get diagnosed plus receive a correct diagnosis. I had many specialists attempting to push pharmacy pain medications on me. Which was a clear indication that they never read my chart/file first. Because I have several autoimmune diseases/rare diseases. All of my illnesses play a big part in my treatment plans. I’m allergic to pain medications and NSAIDs. I can not take any medication for fevers. When I get very symptomatic with my flare ups I have a fever. Tylenol has never in life helped me and it’s the only thing my new primary care healthcare provider will advise me to take after she actually read my chart. My rheumatology specialist did find that Flexeril at night was fine. I use them in moderation plus alternate with cannabis gummies. I also use medicinal remedies nowadays classified as “holistic.” Epson salt soaking, herbal teas, candles, music , poetry for mental health.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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