Welcome to the forums, vbacmom. I see you're a 5+ year member, although this is your first post. I don't know anything about your concern, myself. But you might take a look at the forums over on PC's sister website: NeuroTalk. There are a lot of members there who are knowledgeable regarding a wide variety of medical concerns. Here's a link just in case you're not familiar with it:

NeuroTalk Support Groups