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Old Aug 25, 2020, 09:59 AM
Lunatyc Lunatyc is offline
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Member Since: May 2020
Location: UK
Posts: 1,200
Quote:
Originally Posted by BeyondtheRainbow View Post
I was in one of the trials for getting lamogitrine approved for bipolar disorder. I'm female and that mattered only that I had a pregnancy test at the beginning of the trial. It was an interesting experience. I very obviously did not get the real drug so that part was a failure but I felt good about doing the study, I got to see extremely good doctors at a time I really needed them and ultimately I was on the real stuff and it helped a bit. So I'm glad I did it, even thought it ultimatley wasn't the drug for me.
If there were was a new drug, an AP, I would possibly volunteer. I see that there are studies for other therapies such as cognitive behavioural therapy. I would have to talk about people from my past. It's not ideal but I must think of myself first for once.
I am OK with being on quetiapine but I just worry about the long term affects on organs like kidneys and heart. The possibility of TD or diabetes. I am not overweight, although the general practitioners guide would put me on the cusp of being overweight but I need to lose pounds in dangerous areas like the midriff. This indicates fat around organs? Quetiapine is bad/notorious for causing high tryglicerides.

Any hope of new generation neuroleptic medications in the same vein of quetiapine, without as many downsides, makes me hopeful. If I could tolerate clozopine I would perhaps be on it but I cannot. I had a near brush with death on clozopine. Not leukopenia. It was my heart that the drug sped up.
Clozopine has some possible brutal and life threatening side effects and I think it is only used because there is still a view and misconception that people who have experienced mental ill health are more often than not "hopeless" cases. Where its not true at all. A last resort with a risk of dying? I can see why some people take the risk having been on a drug that didn't work - Risperidone
We are still in the dark ages with mental health treatments I feel at times.

Last edited by Lunatyc; Aug 25, 2020 at 10:19 AM.