Rare Disease Day 2021 (Feb 28th) was nice.
I like awareness walks and runs. I ran for my rare diseases. I ran for my teenager’s rare diseases. I ran for all BIPOC with rare diseases. I ran for Ahmad Abrey, Finish The Run. Total run 1 hour and a half.
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.
1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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