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Cocosurviving
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,892
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PC PoohBah!
Default Mar 19, 2021 at 09:31 PM
 
Today was better. My appointment with my new immunologist went good. All the news was not good but I appreciated that he thoroughly went over 5 pages of labs line by line. I do feel he’s very knowledgeable, it’s still important to me that all my providers not lash out like a narcissist when I decline a treatment recommendation. At the end of the day they need to respect my final decisions. It’s my body and I’m not willing to roll the dice on medications that have severe side effects. It turns out my Hashimoto levels are completely out of wack which is causing my two rare diseases to flare up. I have a lot of medical discussions to make very soon. I’m just trying to relax this weekend and take it easy. I’ve been restricted from running [emoji2094] which my feet are swollen, I can’t get any of my shoes on. I purchased a pair of recovery slides.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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