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Old Apr 03, 2021, 03:18 PM
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Cocosurviving Cocosurviving is offline
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Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
Quote:
Originally Posted by Anonymous41006 View Post
I certainly hear you on all that @Cocosurviving ...

Often I pfeel as if I'm betraying myself (& my experience) by providing those stock answers instead of saying how I really pfeel.

"Above The Dirt" has become my latest usual response ... Still pfeels like a bit of a betrayal though.

This one cashier at the grocery store (I go at 6:00 a.m. to avoid crowds) carps and moans about all the crap she's dealing with as she's ringing me up. It's obvious the amount of pain I'm in as well as my struggles (mobility cart / two canes / difficulty ambulating) but on & on she goes ...

Sometimes I want to tell her to STFU and to just be thankful that she's still able-bodied & able to work!

Then I think well hell maybe we're all simply doing the best we can with what we've got ...

It sure as hell can be absolutely pfrustrating as hell sometimes though!


I like your response, “above the dirt.”

I use a cane 🦯 when my pain (Fibromyalgia) is at certain levels. I have grab bars installed in my restroom and a shower chair.

I have an account on The Mighty. It has different medical related, mental illness communities, a supportive system, “distract me” and “check in on me.” Etc.

I subscribe to newsletters. I like that writers for the communities will compile a survival kit (Fibromyalgia Survival Kit) based on reviews. Each article includes a list of recommended products when dealing with “Depression” and “Fibromyalgia” etc.

I’ve added several items to my Amazon Wishlist. I recently ordered a foam roller to use after walking or running.

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Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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