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Cocosurviving
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,879
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Default May 03, 2021 at 12:16 AM
 
“People make time for who they want to make time for. People text, call and reply to people they want to talk to . Never believe anyone who says they're too busy.”

“One of the most important ways you can help a loved one who is chronically ill is by being present.

Simply listening to someone can have a significant impact on their day and overall well-being.

We do not know how someone else is feeling unless we are willing to listen to them. Whether it be a bad day or a good day, approach each conversation with an ear. Be ready to listen.
When we listen, we are allowing the speaker to communicate their feelings. This lets us know if that person is happy, frustrated, depressed, sick, or sad. We can understand each other more clearly through positive, effective communication. We all need someone to talk with during times of joy and times of sorrow. So, when you listen, make sure to pay attention, be non-judgmental, and provide feedback. It makes a world of difference when we feel like our voice has been heard.”

I do not find it acceptable for people to be dismissive, part of toxic positivity and
claim to know know what a Spoonie [emoji1633]is.
Lean in, listen and learn.
.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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