My origin post from Saturday July 24th 2021.

I feel grateful I logged in 380 days in a row, logged 343 exercises and logged 580 meals.

I’m grateful that: depression did not win. chronic illnesses did not win. I’ve started many projects and not been able to complete them as a result of dealing with depression and/or chronic illnesses. Depression and chronic illnesses keep me from getting involved in many things.

Why? I deal with the fear and anxiety of not being able to guarantee, I can consistently show up and participate. Having a lot of health barriers complicates participating in activities or activism. Weather changes is a constant trigger. Individuals with chronic illnesses never know from one day to the next if a flare up will begin. Will the flare up be mild? Will the flare require a treatment that can OLNY be given in a hospital or urgent care? How will I feel after the treatment?

Treatments and medications are NEVER a guarantee the individual will be in remission.

I receive two monthly injections for one of the rare diseases I have. After my first treatment in April, the next day I went to run at our local YMCA. I left after I it was my asthma flaring up. My symptoms increased, it was actually side effects from my Xolair injections.

The second month was better. The third monthly injections, I had an allergic reaction to band-aids. This mont, I received my fourth treatment yesterday. I had a flare up at 3:30 AM. Chronic Idiopathic Urticaria, chronic itching hives…hives that can itch so bad they make the skin feel like it’s burning. Hives that can cause your airway to close.

It was hard to stay motivated, not get depression. And hope this flare up, the day of receiving my treatment is an isolated incident or due to stress. I’m grateful to my ancestors for strength. I’m grateful for traditional ways, ceremony and Native Indigenous voices that help me push forward.
********************************* #disabilitypridemonth #depression #bipocmentalhealthmonth #mentalhealthvsmentalillness #bmiis******** #chronicidiopathicurticaria #indigenousspooniesrevolt #rarediseases
#autoimmunediseases #fibromyalgia #Hashimoto

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