I had a horrible flare up with two of my rare diseases. I scheduled an emergency appointment with the immunologist on duty.
We discussed Fibromyalgia too. I was concerned my monthly treatments were causing an increase in my Fibromyalgia pain and other symptoms.

I agree to see a dietitian to discuss an anti-inflammatory diet plan. I hate taking a crapload of medication. I agreed to add two new medications and increase the dosage of my monthly injections (Chronic Idiopathic Urticaria) for a period of time.

However I made my rules very clear. No medications that cause certain side effects.

My immunologist, Dr. C., is nice however I do have a good rapport with the other immunologist (Dr. M.) in the practice. She listens and understands why I can’t take sedative antihistamines during the day, why I don’t wanna take medications or treatments that cause hair loss, weight gain, depression or suicidal ideation.

I feel like male nurse practitioners,doctors and specialists don’t get it. Don’t get that mainly women are taking kids (a kid) to school, picking kids up from school, helping with homework, cooking dinner, taking kids to sports activities etc. I don’t get, how they don’t comprehend, patients can’t sleep our lives away.

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