Quote:
Originally Posted by SprinkL3
@ SandyWeb - thank you so much! You have such the sweetest reply to my post. Sometimes I ramble though. I'm glad you are able to put off chores when you need to. Part of self-care is knowing your limitations - or at least figuring them out, regardless of what other people think or say.
Regarding your nurse, can you request a different one? Are you in the U.S.? If so, you are entitled to request a different practitioner or a more seasoned talk therapist if what you're receiving isn't working for you, or if the relationship doesn't seem to be helpful to your condition(s).
A good talk therapist will help you figure out what coping skills will work best, what treatments to do, and how to do all of that.
Hang in there. The first step is acknowledging what you feel, and that is what it seems like you're able to do now - in terms of what is working or not working with the treatments you're currently getting.
And, I totally understand dealing with people who just don't get that a routine isn't always feasible for people whose daily lives could change in an instant, including those with pain management problems, fatigue issues, and certain mental health conditions. All of these invisible disabilities are challenging for us to deal with, and for others to sympathize with since they can't see it visibly.
(((safe hugs and warm wishes)))   |
Thanks for your lovely response. It's okay to ramble. Lol. Whenever I send an email, they seem to go on forever about NOTHING.
I live in Canada, and my pdoc of the last 2 years is closing my file (if it hasn't already been closed). I never saw him except for about 3 times...the initial talk (when I received him after getting out of the hospital), once via Zoom because of some issue I can't remember, and then the "farewell, good luck, our time is now up" talk. All he did was send in prescriptions to the pharmacy every three months.
His assistant is the mental health nurse. She was the one who I talked with on a very irregular basis. She would tell the pdoc whatever she thought was relevant. She wasn't of any help. She basically was just an ear that was half closed-off...not paying a great deal of attention. She never took any notes.
There is no such thing as talk therapy here UNLESS you have the finances to pay for a psychologist yourself at about $200/hour!!!!! That's out of the question. I'm on Income Assistance due to my anxiety disorder. The "supposed" psychosis came on over the years from high levels of anxiety and fear. But how I would LOVE to talk with a professional about all the memories I have, and that still disturb me. I don't feel secure or safe.
And I agree totally with your last remarks about people not understanding that a schedule does not help when you never know from day to day how you are going to be. Your last paragraph hit the nail on the head.
Continue to take good care of yourself. I'm glad that we have met here on MSF!