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Cocosurviving
Elder
 
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,892
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Default Feb 09, 2022 at 07:04 PM
 
•I Just Need to Vent and Get My Feelings/Frustrations off My Chest. I’m not Seeking Feedback.

•I Often Feel People with Multiple Chronic Illnesses Have No Place or Voice in the Chronic Illness Community.

•Words Matter the Constant Use of Chronic Illness vs Chronic Illnesses Really Upsets me on Days that I Struggle.

•I’m Freaking Exhausted with Having Multiple Chronic Illnesses. I Feel like a Single Parent with Quintuplets.

•I Get one Chronic Illness Back to Baseline However the Others Get Triggered and I’m Dealing with More Flare Ups.

•The Constant Flare Ups Really Trigger My Depression.

•I’m Tired of being in Pain.

•I’m Tired of Missing Training/Workshops.

•I’m Tired of Feeling Nauseous.

•I’m Tired of Medical Bills.

•I’m Tired of ****** Health Insurance.

•I’m Tired of Fatigue.

•I’m Tired of Dealing with Vitamin Deficiencies.

• I’m Tired of Constantly Sleeping.

•I’m Tired of Chronic Hives.

•I’ve Tired of Swelling.

•I’m Tired of Figuring Out Which Chronic Illness is Causing Which Symptom.

•I’m Tired of Hashimotos, Fibromyalgia, Asthma, Alopecia, Chronic Urticaria and Angioedema.

•Today I’m also Tired of Crying.




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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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