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Cocosurviving
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
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Default Feb 21, 2022 at 07:36 AM
 

Ups and downs

Downs
I was symptomatic for three weeks. Chronic Illnesses flare up. I attended three medical appointments last week… my primary care, endocrinologist and immunologist. I started another medication to control Hashimotos.

Fibromyalgia
I experienced a week of increased Fibromyalgia pain. I usually have a lot of pain in my legs, arms and tender points in my feet.
I have an appointment in two weeks with my Rheumatologist.

Depression
My depression is usually triggered by my chronic illnesses. I definitely have days I’m so frustrated with being symptomatic. I get upset about having a crapload of medical bills…..so much is not covered by insurance. I’ve applied for Medicaid multiple times and apparently I’m not poor, poor. I keep getting denied.

Venting
In a society that attempts to push toxic positivity on womxn, I’m glad groups and forums exist.
It helps to clear my head and frustrations. It’s a process to brainstorm and figure out solutions.
I really do get exhausted from chronic illnesses, health insurance bs, medical bills and out-of- pocket expenses not covered by health insurance.
It was hard receiving phone calls, letters and e-mails about multiple medical bills. They do not care if you make payments. Most hospitals don’t seem to relate to people who are on a fixed income and want medical bills paid off in 3-4 payments. They definitely fail to comprehend a lot of people with medical bills have several medical bills. I had medical bills sent to collections while I was making payments. I noticed that one hospital
listed the same medical bill twice. I did contact the credit bureaus.

Ups

I decided to space my medical appointments out more. I had appointments with specialists weekly and every two weeks. I started making detailed notes to get the most out of my appointments and having my provider check that I have refills.

When I’m symptomatic I sleep a lot. I took naps and went to bed a lot earlier than usual. I ate a lot of fresh vegetables and fruits.

I enjoy functional paper planning and attending virtual workshops. I use money management sheets to track my medical bills and the payments I make. I include the account numbers.

I pick workshops that interest me and align with the personal growth that I seek.
I popped in last week the last 30 minutes for two workshops (Monday and Thursday). Friday I participated in a full healing [emoji3590]*🩹 gathering that lasted about 45 minutes.

I’m still going to bed early. My teenager school district is out of school this week. Parent Teacher conference is next week.

I’m excited that Feb 28th is Rare Disease Day. I have several autoimmune diseases but also have two rare diseases.

__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata

Last edited by Cocosurviving; Feb 21, 2022 at 08:37 AM..
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