Hey !!

Nammu I’m so sorry Mum is back in the hospital. Pneumonia is pretty common unfortunately I am so glad your getting some good sleep. Hope you have more awesome dreams I really enjoy hearing about them.

Soupe .. oaf I am sorry you might have a UTI hope the GP will order antibiotic outside of a office visit. Go here go there stuff see one Doctor after another is in my opinion stupid. I really hope that you will get through these and not have appts coming at you left and right. Glad you and hubby had a nice day out.

Miguel’s mom .. as others have said you really need to focus and push to get medications that you really need. It’s time for all 3 of you to get the medical care needed and enjoy life more your husband and Miguel. You guys are so due for some good stuff.

Beth . That dream sounds amazing. I think the only time I enjoyed school and wasn’t bullied was up to 4th grade I think. Those smells were comforting. As for your telling Mary about your doing your own increase? Her not being thrilled is really in her “job description “ it’s common and I think all of us have tinkered with our meds at some point so I’d honestly not be bothered by it. Hopefully you will get the go ahead to increase with appt with your Doctor. Ooooo now I want a tea lol

Muddy I know I’m wicked late asking about that horrid cold you went through. I can not even imagine those temps.. nope nope nope.


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Well day 2 off Rinvoq and I defiantly feel more pressure / pain in my joints so the Rinvoq was working. I see my Rheumatologist next week so he will figure out something else. I’m really just angry that my medication plan is no longer covering Xeljanz .. it was working well with no side effects.

Last night I had another night of alerts of 130’s heart rate. Very stress inducing certainly. This evening I’m running 115 and below with just a few runs of 130. So improvement. I’m hoping my heart rate will further stabilize back into 70’s - low 80’s.

I’m wearing shorts ! Unusual warm day ! I am so ready for Spring ! Bring on my horrible allergies but I will be warm at least !

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