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The_little_didgee
Grand Magnate
 
Member Since Apr 2013
Location: Ontario Land
Posts: 3,591
11
PC PoohBah!
Default Apr 14, 2023 at 01:54 PM
 
Anyone struggle with this? What has helped besides antihistamines and steroid creams? The idea of using steroid ointments for life is unacceptable especially on private area skin.

I've tried the lifestyle and product suggestions in the booklet I was given. The only new suggestion was coconut oil which I will try. Have you tried this? If so what were the results?

Does this go away? I've had it since 2019 and cannot get rid of it, no matter what I do. I'm frustrated.

I saw a pleasant gynecologist, but felt a bit unheard (perhaps even minimized). I recognized some bias due to the nature of the appointment and the content in the referral. -- Tara the nurse was awesome. I liked her communication style.

I thought I would add the following since I have psych history. Doctors have used it against me.

This is copied text from the MyChart entry:

Patient had photographs on their phone which showed the vulvar when acutely inflamed which is characterized by an erythematous patch on the left anterior labia majora.

Tip: Always have proof. It helps back the story and maintain credibility.

__________________
Dx: Didgee Disorder

Last edited by The_little_didgee; Apr 14, 2023 at 03:41 PM..
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