View Single Post
 
Old Jul 19, 2023, 11:48 PM
BeyondtheRainbow's Avatar
BeyondtheRainbow BeyondtheRainbow is offline
Legendary
 
Member Since: Apr 2015
Location: US
Posts: 10,167
Quote:
Originally Posted by buddha1too View Post
I've written about my new psychiatric nurse practitioner's ability to closely monitor my moods & adjust my meds as needed. I've been fairly stable since I've started seeing her. While I'm currently dealing with moderate depression, I'm not having the wild ups and downs I once had. There's a part of me that's deathly afraid of being too stable because I would lose my disability, Medicare, & access to an ABLE account, How sick is it to worry ab getting better?!

I've been worried about that since I started clozapine and it helped. That was in 2016 and I think I've only had 1 review since then. And all it was just a thing that was "still disabled?" (check) and a few others.


The reality is that if I were to be denied I would fight it (and they have to continue paying you while you fight) and my providers would stand up for me heavily. They both know there is no way I'm able to go back and there is a list of those things, including I'm not safe to drive until noon at best, get tired extremely easily, can't tolerate noise, forget things easily, etc. Nobody would want that as an employee and I think SS saw it and decided to leave me alone (I'll now get a renewal tomorrow ).
__________________
Bipolar 1, PTSD, GAD, OCD.
Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily
Hugs from:
buddha1too, Nammu, Rosi700
Thanks for this!
buddha1too