View Single Post
sabby
Moderator
Community Support Team
 
sabby's Avatar
 
Member Since Feb 2005
Location: Southwest of Northeast
Posts: 33,346 (SuperPoster!)
19
6,304 hugs
given
PC PoohBah!
Default Jun 14, 2008 at 11:10 PM
 
(((((((((((( SingleGirl )))))))))))))

Being sick like that is so difficult. Autoimmune diseases are some of the most difficult for folks to understand. Unless your rashes are quite visible, I'll bet that 90% of the time you "look" fine. It's the same with folks who have MS....they can look extremely healthy, yet inside they are dealing with much neurological pain, problems with eyesight and memory etc. People look at them and say...what's the problem...you look great? *sigh* I've seen first hand a friend who has lupus and what she goes through at any given time. My heart goes out to you because you never know when a flare will occur, no matter how prepared you are, it's never enough. I know a flare can be any combination of things.....not to mention the internal damage that is being done and the meds needed to survive...yep...it sure can be difficult.

Ignorance speaks volumes when folks don't even try to have some kind of understanding about these kinds of illnesses. I hope you find the kind of support and understanding here that you deserve. Also, have you visited our sister sight called NeuroTalk? You may find some great support and information there as well. Best of both worlds you might say

Take good care of YOU!


sabby
sabby is offline   Reply With QuoteReply With Quote