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Old Feb 27, 2024, 09:29 PM
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Member Since: Jun 2016
Location: Where the sidewalk ends
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Quote:
Originally Posted by BeyondtheRainbow View Post
Yeah. It's annoying. I was in a clinical trial for it and it was blind so I had to go up that slowly once without knowing if I was getting the real med (I am pretty sure I wasn't since I had no response), then taper down, then taper back up again on a known med (that time I had a response). It was really tough. Then I went off it after a year or two and back on it out of desperation 5 years later. That time I got up to the full dose, had a great week and got the rash. So I know how frustrating it is but I promise you don't want the rash. Do you have enough to last until you see your pdoc or another (which may take a bit to get in if pdocs are scace)?
I think I have enough.
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