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SquarePegGuy
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Member Since Mar 2020
Location: Northeastern USA
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Default Apr 13, 2024 at 07:59 PM
 
@Cocosurviving, it seems to take a long time for a rheumatologist to reach a diagnosis of Lupus. In the meantime, a patient can get a "smorgasbord" of ailments, as you seem to have.

My wife had Epstein-Barr as a teenager. After the baby was born and then diagnosed with autism a few years later, her health started to unravel. Sjogrens, Hashimotos, transverse myelitis (TM), Hughes Syndrome, Connective Tissue disorder, tendonitis, and so on, all would appear and then fade out eventually. Except, it was the TM that damaged her spinal cord and left her overly sensitized to pain.

Lately she gets sudden onset of fatigue and depression after she goes out into bright sunlight. I've heard that folks with Lupus cannot tolerate the sun. At this point it's too exhausting and expensive to get all the blood tests that are required for the diagnosis.

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Major Depressive Disorder; Sleep Apnea; possibly on the spectrum
Nuvigil 50mg; Effexor 37.5mg; meds for blood pressure & cholesterol
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Thanks for this!
Cocosurviving