Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
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Apr 16, 2024 at 12:02 AM
Quote:
Originally Posted by SquarePegGuy
@ Cocosurviving, it seems to take a long time for a rheumatologist to reach a diagnosis of Lupus. In the meantime, a patient can get a "smorgasbord" of ailments, as you seem to have.
My wife had Epstein-Barr as a teenager. After the baby was born and then diagnosed with autism a few years later, her health started to unravel. Sjogrens, Hashimotos, transverse myelitis (TM), Hughes Syndrome, Connective Tissue disorder, tendonitis, and so on, all would appear and then fade out eventually. Except, it was the TM that damaged her spinal cord and left her overly sensitized to pain.
Lately she gets sudden onset of fatigue and depression after she goes out into bright sunlight. I've heard that folks with Lupus cannot tolerate the sun. At this point it's too exhausting and expensive to get all the blood tests that are required for the diagnosis.
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Thank you for sharing. I have a follow-up appointment with my rheumatologist in May, for now I have one medication aimed at reducing inflammation. Me and my teenage son take walks in the evening. I make sure to apply sunscreen in the morning, and reapply in the evening, in addition to applying off.
My pain has reduced and I make sure to regularly stretch. I also drink a lot of water. I struggle with avoiding sweets. I hope things get better for your wife.
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Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.
1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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