It worsened again, making us think that I do have narcolepsy and it was not just related to low iron, because it worsened while the iron reserves were (very slowly) improving. So I asked my pdoc to prescribe Ritalin.

Ritalin is working for this. And very gently, with no side effects at the lowest dose. I tried two tablets (not at the same time) last week and got terribly dizzy. It felt as if something inside my head were spinning. I then look up dizziness and it is a common side effect of Ritalin. Luckily at the lowest dose I do not get dizzy.

For now I am in a state of (happy) disbelief that a solution has been found that works so very gently.