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SquarePegGuy
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Default May 07, 2024 at 08:37 PM
 
Quote:
Originally Posted by Kathleen83 View Post
-snip-
So I guess what I'm realizing is, what I need, is what they aren't equipped to provide. My mental health issues aren't things they are set up to deal with. Silly me, looking to the specialists in dying to seek assistance for the struggles of living.-snip-
The hospice team should include a grief counselor or social worker for the family. I can understand if the person was not helpful -- that can happen sometimes. But at least there should be someone.

My wife was in hospice (at home) for several weeks, and then transitioned back to the land of the living. It was a lot of work for me. It still is, occasionally.

In an earlier post you mentioned leaving when your husband had visitors. I can definitely relate to this! It's so important to get away for self care.

You also mentioned the ordeal of keeping everyone up-to-date on your husband's condition. One thing I learned was to designate one or two reliable people to do this for you. One could be from his side of the family; the other, your side.

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Major Depressive Disorder; Sleep Apnea; possibly on the spectrum
Nuvigil 50mg; Effexor 37.5mg Wellbutrin 100mg; meds for blood pressure & cholesterol
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