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HALLIEBETH87 I'm sorry that happened to your friend. My pdoc actually wonders if covid is causing people to develop POTs because he has multiple patients right now with a new POTs diagnosis when, up to this point in his career (30 some years I believe) he had one or two patients total with POTs. I know at least one of his other patients with it got it after covid as well. I had multiple covid tests done when I got sick (at home and by a doctor) but they all came back negative so I guess it was something else.
This afternoon, I messaged my neurologist to ask about a possible alternative medication than the corticosteroid. Sadly, I chickened out and didn't have the guts to say because I'm worried it will trigger bipolar symptoms. I just said, based on side effects I had with other steroids, I'm worried about taking this one. The IV I got yesterday has definitely helped somewhat, but I still got dizzy standing after standing for not that long so, if the IV won't help with those symptoms and there is no medicine alternative, I might give the corticosteroid a try. I'm waiting to see how this week goes symptoms wise before making any final decisions.