Thread: Living with Disabilities: While Working and/or In College
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Cocosurviving
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Location: Muscogee (Creek) Nation Reservation
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Default Yesterday at 12:11 AM
 
In June 2024, I signed up for Ticket-to-Work through SSA, and started working part-time.

In Aug 2024, I started working full-time with the goal of gaining access to private health insurance. I signed up for private health insurance this month, October, and my plan is much better than Medicare. My specialist copays cost half the price!!!!

I never thought that having a rare illness, Hereditary Angioedema, would help me land a job. It turns out giving myself IV infusions came in handy. I work in blood collections.

Lupus SLE: I received a second opinion on Aug 16th, 2024, which confirmed a second time that I have Lupus SLE.

Food and Wellness: My rheumatologist also recommended I adhere to an anti-inflammatory food lifestyle. I walk a lot for mental well-being.

On Saturday, I completed a DRS - Career Planning assessment, which is a step towards returning to school.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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