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Moose72
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Location: USA
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Default Today at 07:36 PM
 
Quote:
Originally Posted by BeyondtheRainbow View Post
@Moose72 Can you see someone else? I know this varies; it would be hard for me to get in with anyone else where I go but I don't think most places are as strict as where I go/who my pdoc trusts with her patients (if I saw someone else it would probably be a resident).

Have you been on other anti-seizure/mood stabilizers like trileptal, tegretol, depakote, topirimate? I was even on Keppra once although that was a long time ago and I've never heard of anyone else trying it. But if you are running out of options it's worth bringing up as a last ditch thing. Before I went on clozaril we went through absolutely every drug possible to see if they'd work instead and still be safe for me. ECT was considered but they decided I wasn't a good candidate at the time. I don't remember why. But I do understand the feeling of "what now?" and I went through a few weeks of that with my pdoc on vacation.
About a month ago my Pdoc and I spent an hour going over the results from the genesight genetic testing which tells you which psych drugs you’ll react to and which you won’t. That still showed some in the can take column which I had horrible reactions to like Invega and severe akathisia. We went through my records and analyzed each med I’ve been on one by one and the reasons I they were dis continued. Lots of meds I had never taken had urinary retention as a side effect which I’ve had twice to two separate med. This requires emergency care and a catheter for a week and hoping you can pee when they finally take the catheter out. I will react to Clozeril so that’s out. I’ve tried or eliminated every psych drug out there. Vraylar and gabapentin were my last chance. But now my liver enzymes jumped way up and I had all those side effects to gabapentin this past week. Still not feeling right on 100s - dry mouth and diarrhea and dizziness like with the 300s. Pdoc is the only one who knows all this besides my case manager and my primary so seeing another Pdoc wouldn’t work. I see Pdoc on the 25th. She’s been out of the office for 3 weeks and it’s hard dealing with her temporary replacement via phone filtered through clinical coverage workers. Pdoc said that if Vraylar and gabapentin don’t work out well have to seriously consider ECT. My primary doctor saw me yesterday and called me today and is very concerned. She is going to contact my liver doctor as my liver doctor said staying on this regimen could cause scarring/ cirrhosis. So yeah. I think I’m going to have to try ECT..

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Ingrezza 80 mg
Propranolol 40 mg
Benztropine 1 mg
Vraylar 1.5 mg, Gabapentin 300
Mania Sept/Oct 2024
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Mixed episode/Hypomania (September 2023)
Depression, Anxiety and Intrusive thoughts (September 2021)
Depression & Psychosis (July/August 2021)
Mania (April/May 2019)
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