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Old Nov 22, 2024, 07:20 PM
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Moose72 Moose72 is online now
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Member Since: Jan 2008
Location: USA
Posts: 18,554
Quote:
Originally Posted by BeyondtheRainbow View Post
After 2 calls to CVS and 2 calls to my pdoc (3? I lost track) my clozaril is being filled and will be ready tomorrow. I take the last dose I have in my possession tonight. I am so relieved. I thought I was going to have to take smaller doses to keep from being totally off it and risking needing to restart it from the beginning if I missed 3 days. But it will all be OK now. I feel so bad because I messed things up and then created an emergency for my pdoc who is very busy on Thursday and Friday, the only days I knew of my error. I won't do that again.


Also, good news. The FDA advisory board voted to get rid of the REMS system that currently monitors clozaril patients and makes life so difficult with the med because of communication problems between doctors and pharmacists and labs and the easily made errors like mine. The FDA still has to vote on it but they usually follow advisory panels' advice. So hopefully this mess will end soon and clozaril will be like any other med that requires periodic bloodwork. That opens it up to so many more people and makes is so much easier on those who are on it. I can't wait to not have to spend time calling both the pharmacy and my pdoc's office every month, usually multiple times.
That’s great news!
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BeyondtheRainbow, Crazy Hitch, raspberrytorte
Thanks for this!
BeyondtheRainbow