Quote:
Originally Posted by Rose76
In the U.S., it is possible to receive palliative care in a longterm care facility. I'm surprised that such would not be the case in the UK. I doubt that what's done in the UK with people at the end of life is hugely different from what we do with terminal patients, even though the "name" of the care make be termed differently. In the U.S., palliative care often means nothing more than easy access to opioids and benzo tranquilizers. The UK pioneered the liberal use of opioids in the care of the terminally ill. So your longterm care facilities may be doing palliative care, without using that term.
You're right to have concern over what kind of home your friend will wind up in. These longterm care facilities vary greatly in quality. In the U.S., to get into a great facility means you have to pay privately. That means you have to have a good bit of personal wealth. I'm sure your country has beautiful places for the wealthy, just as we do. Then there are the regular nursing homes that are all understaffed. I'll bet that's as true in your country, as it is in mine. Still, people get cared for in these places. Visitors can make a big impact on quality of care. A dying person is in no shape to advocate for herself. Family and friends can do that for them. It can make the difference between getting taken to the bathroom when one needs to go and not getting taken. If you are able to visit your friend, you can make a real difference.
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Rose76 thanks. Yes I think it’s the case that palliative care beds are prioritised here as they are limited unfortunately, the ward was just a regular sized ward. I think (hope) if it’s imminent a bed would be given, but with my friend there’s no telling how long this will take.
The good news (I think) is that she didn’t go into a nursing care home, they sent her back to her assisted living facility flat, her care package has been increased. It seems like so far they are able to provide for her basic care needs there, along with home visits from specialist nurses. She’s as comfortable as possible there, and she’s got her home comforts there. I think the care workers are variable but the one who came when I visited yesterday was lovely.
Anyhow I’m processing it all and I dread the day she’s not hear anymore, but we’re not there yet. That’s the important thing.