Quote:
Originally Posted by avlady
i have been on levothyroxine for several years now and i used to be on a higher dosage but the doc lowered it significantly. i now feel like i am going to pass out or die from tiredness. it could be from other different pills im on, but i really only noticed it right after it was lowered. i do have several other conditions, even diabities that i take insullin for. i wonder if anyone else has had problems with the synthroid or levothyroxine?
|
I feel like undertreating is the new thing. I have heard stories now how people aren't allowed to be closer to the higher range normal on their t3 and others. I have tried to find info why they do this.
In the way past they treated by pulse rate and temperature, that worked better.
I realize I was one notch from myxedema coma (which isn't a coma, it is very sluggishness and near non responsive). I gained 10 kilo in water weight in 2 weeks, developed myxedema that made me change clothes size a lot (luckily I wear a lot of ovesize otherwise I'd have no clothes). I felt like suffocating if I did something minor. My leg muscles would just give out if I walked more than a few minutes. I was very confused. My eye brows fell off.
I added my real dosage back, it actually didn't do much, so I did a lot of hypothyroid stuff. Like taking selenium, zinc and vitamin D, also calcium. Drinking two servings of fluid replacement every day. It has sodium, potassium and magnesium. I'm finally bouncing back a bit. I'm not one to over salt food so I do well on extra sodium.
My doc did one good thing, he ordered TPO and uric acid tests. They came out extremely high which is a result of extreme undertreated thyroid when you lowered too much even when T3 is normal. He refused to address those now, but I have it on paper.
I feel like we're seen as tin foil hats because we get sick from how they treat us. Like they think we don't trust them. But I trust my body. Myxedema is not normal.
If I was more brave I'd go back to the first doc and tell him how he almost killed me. I was brave at some point in life but medical abuse has changed that. But I have to at least talk to a nurse to get refills.
Before all this happened, I couldn't pick up Synthroid before I had used up all tabs so I wouldn't hoard or take too much. This has only happened to me with addictive meds so something is really going on that I don't understand.
I have learned more too, like T3 in your blood doesn't have to show that you actually use it, there is an anti T3 thing that you can have in your blood so T3 doesn't get used. I wish they'd test for that.
I believe you and how you feel. Let me tell you why you feel this bad. I'm really sorry if I'm lecturing about things you know, but this was news to me. When you are on a too low dosage, ATP (the smallest food/energy molecule that food is broken down to), is not allowed into your cells. That means your body is starving. And it is a starvation that is worse than actually not eating while healthy, because then you can use your body fat. But with this you are limited in using food or body fat. This is really scary.