Also, do you have any allergies or hormonal inbalances?
Did they ck for aqua stenosis?
How bout ear peoblems?
See, a thourough physician, starting with a new neurologist, and work your way through the testing again to rule out things until they find it...
Meanwhile, relaxation techniques, soft lighting, no cheese. no chocolate and those other creature habits that are known headache culprits - avoid for awhile. also, do you feel better when you have had some caffeine?
Could this be vascular?
So much to find out. Godd luck with it.
Hope you find relief soon. Meanwhile, pain med. could help, but it doesn't get to the source of the difficulty.
peace and comfort,
night